Hi there! I too was born with congenital clubfoot, bilateral talipes wherein both of my feet where affected as a baby. I was operated on at 3 months and wore casts until I was 3. I also had my Achilles tendon cut. These casts had to be removed and replaced every two weeks to further …
I am looking for some advice or some similar stories, so I can try and make sense of what is happening to my body. I was born with positional club foot, basically my feet were stuck in my mother’s rib cage and ended up distorted to the point my big toe was pointing upwards and …
Club foot when younger. Now 28 and experiencing pain again Read More »
This is the first time I’ve ever shared my story, at the age of twenty nine I am finally able to wear my disability not as a scarlet letter but rather as my badge of honor because I have been through so much, when I was born I was diagnosed with Congenital Talipes Equinovarus or …
Hello. First I wanna say how tear jerking this website is for me. I grew up thinking in the only person in the world who had this awful defect. But reading these stories has given me a sense of hope. I had severe bilateral clubfoot and was treated by a doctor in LA California. Who performed …
Hi there, I’m Hailey and 13 years old. Most of my life, my Clubfoot has just been there, but it never bothered me because I was a kid. But going into Highschool, people start picking out things about you in order to make fun of you, and it’s always my Clubfoot that is targeted. I …
Hello,I’ve been very reluctant to share my clubfoot story and my struggles after my military service but now I need some help and I think sharing my story is a good step in that direction. I was born with a talipes on my left foot, I also had some malformation on my hip. To make …
Just wanted to say how good it Is to be able to share what can seem like a lonely experience. I am 42 years old and was born with severe bilateral talipes. Like many had no heels or ankles and feet were round almost round the other way. I have had more operations than I …
Hi all, my name is Nin. I just want to tell you all about my experience with clubfoot. I had issues from birth as all you did. My kneecaps would dislocate all my life up until 25 years old, when I went and got the ExoSym devices. I have bilateral clubfoot, and they take the …
I was a couple days old when I had my first surgery. Then had one every 6 months total of 19 operations I had. I still get pain in my right foot. My foot is half size shorter than my left. I use to get shoes special order. My dad was determined to get my clubfoot fixed. …
Hi everyone, I hope that this message finds you happy and content. I was born in 1983 with very severe bilateral clubfoot. My parents were two working class people in their early twenties and I was their first child 9 months after their wedding. They jumped into the pool head first and probably found that …
Hi! I was born in 1955 with small feet and extremely high arches, especially in my right foot. Fast forward to 2015, when I fell, while sitting on a bike, sideways onto the concrete. I shattered my left hip and received a total hip replacement. After my unremarkable recovery, I began to develop severe right …
I’ve always felt so weird reaching out to groups on the internet about this. but Hey! I’ve suffered with severe bilateral CTEV all my life and both feet did turn in about 180-200 degrees. From birth I barely had any ankles so they were made up. My feet look horrific still to this day (kind …
My husband was born with club feet in the fifties.. He is a twin. Now at age 62 he has had a year of pain. the pain is alleviated a little bit with his new orthotic shoes. but, what can he expect? what can we expect? we have seen a specialist, but we are not …
I was born with bilateral talipes in 1960. In later life, my mother told me she was convinced she had taken morning sickness tablets containing the drug thalidomide. Which was known to cause birth defects. I had surgeries at ages four and again major surgery at seven at the RNOH under Mr Hugo Kemp. At …
Hello my son was born in 2002 with severe clubfeet. They turned completely in. At 8 months of age after 7 months of casting which did not work he had surgery to correct the feet at Denver children’s hospital. My son Seth grew to be an active young man without any issues until his freshman …
Hello my name is Monica. I am 45 years old, and I was born with a left club foot. I am from Colombia, and now I live in Las Vegas. I was treated with casting and seven surgeries. I am so happy to find your website. I truly feel I am not alone. For the …
Just over a year ago I was referred to a physio after complaining to my GP about pains in my left foot and noticing a wobble when I walked. The physio started the examination by asking me if I knew I had a slight club foot. At the age of 61 this was a bit …
I’m so glad there’s a page on this! Hi I’m 32 next month and I was born with severe bilateral talipes both feet turn in touching the inside of my ankles.. I had an operation done on them to correct them and was in casts rite up til I was 9months. They thought I’d never …
My name is Suzanne and I was born in 1950 with bi-lateral club feet. Immediately having casts with the bar inbetween my legs I was treated until I was three. Then came the years of the ugly brown man looking shoes. At the age of around 8 or 9 my left foot had surgery to …
I’m 48 year old male born in 1970 with bilateral club feet when the first started doing the Ponseti method. I have had only the castings, the Achilles’ tendon lengthening, and the metal bars with the shoes when I was a baby and toddler. I feel I was lucky that I never had to go …
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