Comments for Clubfoot Community

Comment on The Ilizarov technique by Chasity

Chasity — Sun, 18 Jul 2010 19:50:37 +0000

I HAD IT!!! Wow never once it I think I’d be excited to ever say that!! I got it done when I was about 12 yrs old. I didnt have it on my ankle just on my actual leg. The best advice I can say from personal expierence is this: Keep your leg straight, Keep pins CLEAN!!! If you think they are clean, clean them again. And also, try not to baby your leg. I didn’t do any of this. I was in the hospital for longer than I needed to because I got an infection. So PLEASE PLEASE PLEASE take this advice to heart. Hope this works. O and my physical therapist was awesome and helped me learn to walk again. I was scared and babied my leg. I now have SO many scars from this but if your embarrassed to talk about it in public, say you were in a car accident, everyone believes it, and no more questions. I’m now 20 yrs old, and starting to wear shorts outta the house, around strangers. I really hope this helps, and I hope I didn’t scare you. Its better to get the Llizarov(?) treatment. If I hadn’t gotten it, my right leg would have been more than 2 inches shorter. I love the doctor I had. Good luck.

Comment on Tell Your Clubfoot Story! by Anna

Anna — Wed, 28 Apr 2010 12:47:52 +0000

I want to put a convention together pls helppp a convention for everyone born with a clubfoot pls response and tell me what you think.

Comment on Hello everyone! by Ruth Maude

Ruth Maude — Mon, 19 Apr 2010 02:14:01 +0000

Hi Niki,

Welcome to the clubfootclub! I have great plans to improve the site in the weeks ahead…and now that the online community seems to be working! I hope that this community will contine to grow and become a great support for all clubfootclub members.

Comment on Tell Your Clubfoot Story! by Steve Trutane

Steve Trutane — Fri, 18 Dec 2009 07:13:46 +0000

Thanks for putting this community site together. I'm eager to contribute my story, but there's trouble with your registration link. It produces a blank page. The HTML source of the registration page cuts out in the header, before reaching the body. Your wp-signup.php is apparently hitting a snag and bombing out. Check your website error log file for details. A quick look at some WP forums suggests that you may have an issue with your plug-ins (like BuddyPress) not being up-to-date. So you might want to look into that, or try disabling them altogether and see if that helps. Best of luck at fixing your site so I can join the fun!

Comment on Tell Your Clubfoot Story! by allenthomas

allenthomas — Thu, 15 Oct 2009 08:02:07 +0000

momofumair; I feel for you and your son. I was born in 1954 and was casted. before casting the feet were massaged and twisted to be more correct, casting lasted three years. I have always had some problems but the casting was really not why. A lot of children seem to have had surgery of some kind. I believe casting is best. But all I know and read anyone with clubfoot will have some problems. Most are easily ingored. Not being severe. You can read what blogs I have written. My story if you like.
Good luck for your son and God Bless you both. Do keeps us informed please

Comment on Tell Your Clubfoot Story! by Ruth Maude

Ruth Maude — Wed, 07 Oct 2009 16:40:37 +0000

Look on this listing to find a Ponseti Dr. near you http://ponseti.info/parents/index.php?option=com_content&task=view&id=26&Itemid=39

Comment on Tell Your Clubfoot Story! by momofumair

momofumair — Sat, 26 Sep 2009 04:04:08 +0000

hello everybody,im really happy that i found a community like this.thanks GOD that i can share my experiace regarding my son is a bilateral clubfoot,he was born last May 4,2009 he is 5 months now,from the time i gav birth to him until now,my eyes always craying,my hearth always aching,but as what they said it is a trials from God,bilieve in HIM and ask HIS help,im from philippines and here in our place we dont have any orthopedic especially for little ones like my 5 month old baby umair,but im trying to go to orthopedic for his casting,i think his doctor was practicing an old ways of casting,He casted only to the knee,contrary to what i have read in this group,my son casted for almost 3 4 months but a little development on him,until the doctor decided that he will make surgery for my son,and from the bottom of my heart,i really dont want surgery for my son,i believe as what i read all the stories of all mothers who have bilateral clubfoot that no need for surgery
like ponseti method but the problems here in our place,all orthopedic are practicing an old ways of casting,i have already 3 doctors who see my son,all of them have only one reply to me SURGERY!Until now still my mind has no peace at all,i hope that this community will give me a peace of mind,thank you and GOD bless us all